Partner Resources

Various Partnerships that provide information on autism.

This collection of resources was developed based on current evidence that quality inclusive care and education can only happen if there is a foundation of high-quality, regular education practices (Sandall & Schwartz, 2008). 

These materials offer early childhood and school age care professionals information on a variety of topics in the form of tipsheets, resource pages, and an expanded virtual toolkit.

Each tipsheet is designed to be a starting point, providing basic topical information and pointing the reader to some of the best sources of extended information on the topic. The Growing Ideas virtual toolkit offers a professional development activity and featured resources for individual or group training or to share with parents and others.

Children's Hospital Los Angeles in partnership with the UCEED at USC have translated the CDC's "know the signs, act early" fact sheets into 13 different languages.

A collection of Fact sheets for 14 mild to moderate special needs conditions have been developed for Dental Professionals, Medical Professionals & Parents and Caregivers.

Center for Disease Control website on children's development with a focus on identifying Autism early. "Learn the sign, act early."  Resources also available in multiple languages.

The Association of University Centers on Disabilities (AUCD), located in Silver Spring, MD, promotes and supports a national network of interdisciplinary centers on disabilities. The members of AUCD represent every U.S. state and territory and include 67 University Centers for Excellence in Developmental Disabilities (UCEDD), 38 Interdisciplinary Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and 21 Intellectual and Developmental Disabilities Research Centers (IDDRC). Together, these organizations advance policy and practice through research, education, leadership, and services for and with individuals with developmental and other disabilities, their families and communities, in support of independence, productivity, and satisfying quality of life.

Drawing on the full breadth of intellectual resources available across Harvard University's schools and affiliated hospitals, the Center on the Developing Child generates, translates, and applies knowledge in the service of closing the gap between what we know and what we do to support positive life outcomes for children, particularly those who are vulnerable, in the United States and globally.

ASAN produces policy advocacy toolkits for system change. These toolkits provide advocates, lawmakers, and professionals with a variety of information, guidance, and resources on specific policy issues, including, where appropriate, model legislation, research overviews, and “know your rights” documentation.

Fact sheets contain background information on a variety of human services topics.

The primary goals of this module are to assess the prevalence and impact of special health care needs among children in all 50 States and the District of Columbia and evaluate change since 2001. This survey explored the extent to which children with special health care needs (CSHCN) have medical homes, adequate health insurance, and access to needed services.

The MCH Navigator is a centralized portal for pursuing continuous learning in MCH and is designed to help emerging and established MCH professionals and students map professional growth pathways.

The Autism and Developmental Disabilities Monitoring (ADDM) Network is a group of programs funded by CDC to estimate the number of children with autism spectrum disorder (ASD) and other developmental disabilities living in different areas of the United States. This link contains ADDM studies of autism prevalence.

Gillette Children’s Specialty Healthcare is proud to serve as the United Cerebral Palsy of Minnesota (UCP-MN) affiliate. As a national leader in health care for children, teens and adults who have cerebral and other complex conditions, we are committed to providing advocacy, education and resources to people in our community.

Notable papers in autism research in 2019.

Impact is published by the Institute on Community Integration, University of Minnesota. Its articles cover a wide variety of topics, from self-determination and supported decision-making to the justice system’s interaction with people with disabilities. Impact is available online at https://ici.umn.edu/series/14. In addition, a free print copy can be requested by calling 612-624-4512 or emailing icipub@umn.edu.

A free resource whose mission is to provide high-quality information for those considering a degree in this field.

A statewide health assessment shows that not all people in Minnesota have the same chance to be healthy. People of color, American Indians, people with disabilities, people living in poverty, and members of the LGBTQ community have less opportunity for health and experience worse health outcomes in Minnesota. This link includes the initial report and presentation to the legislature (2014), along with following yearly reports.

The New England Regional Genetics Network (NERGN) aims to improve health equity and health outcomes in individuals with genetic conditions, reduce morbidity and mortality caused by genetic conditions (including congenital and metabolic disorders); and to improve the quality of coordinated and comprehensive genetic services to children and their families.

#ADA30 2020 was the 30th Anniversary of the Americans with Disabilities Act. This page celebrates the last 30 years.

The Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was released in May 2013, bringing with it several revisions to the criteria for the diagnosis and classification of mental disorders. One important change was for Autism Spectrum Disorder (ASD) classifications. Under the new DSM-5 criteria, clinicians will diagnosis individuals with a single umbrella diagnosis of ASD, rather than the four separate disorders that could be diagnosed under the DSM-IV: autistic disorder, Asperger's disorder, childhood disintegrative disorder and pervasive developmental disorder not otherwise specified.
 

The Office of Planning, Research and Evaluation (OPRE) studies Administration for Children and Families (ACF) programs and the populations they serve through rigorous research and evaluation projects. These include evaluations of existing programs, evaluations of innovative approaches to helping low-income children and families, research syntheses and descriptive and exploratory studies.

The Indiana Resource Center for Autism (IRCA) staff conduct outreach training and consultations, engage in research, and develop and disseminate information focused on building the capacity of local communities, organizations, agencies, and families to support children and adults across the autism spectrum in typical work, school, home, and community settings. The Indiana Resource Center for Autism does not promote one method or a single intervention. Instead, IRCA staff strives to address the specific needs of the individual by providing information and training on a variety of strategies and methods.

This collection of resources was developed based on current evidence that quality inclusive care and education can only happen if there is a foundation of high-quality, regular education practices (Sandall & Schwartz, 2008). 

These materials offer early childhood and school age care professionals information on a variety of topics in the form of tipsheets, resource pages, and an expanded virtual toolkit.

Each tipsheet is designed to be a starting point, providing basic topical information and pointing the reader to some of the best sources of extended information on the topic. The Growing Ideas virtual toolkit offers a professional development activity and featured resources for individual or group training or to share with parents and others.

Series of lectures on neurdevelopmental topics form distinguished professionals in the field on a variety of topics from genetics to communication.

A collection of Fact sheets for 14 mild to moderate special needs conditions have been developed for Dental Professionals, Medical Professionals & Parents and Caregivers.

The Autism Internet Modules were developed with one aim in mind: to make comprehensive, up-to-date, and usable information on autism accessible and applicable to educators, other professionals, and families who support individuals with autism spectrum disorders (ASD). Written by experts from across the U.S., all online modules are free, and are designed to promote understanding of, respect for, and equality of persons with ASD. 

Autism NOW: The National Autism Resource and Information Center will be a dynamic and interactive, highly visible and effective central point of quality resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other targeted key stakeholders.
 

RTI holds the promise of ensuring that all children have access to high quality instruction, and that struggling learners - including those with learning disabilities - are identified, supported, and served early and effectively.
 

Center for Disease Control website on children's development with a focus on identifying Autism early. "Learn the sign, act early."  Resources also available in multiple languages.

This week, after receiving the conclusions of a multiyear ethics investigation of UK doctor Andrew Wakefield performed by the General Medical Counsel (GMC), the editors of British medical journal The Lancet formally retracted a study which purported to find a link between the childhood MMR vaccine, gastrointestinal disease, and autism. It was published in 1998 and has been a source of controversy ever since.

The primary goals of this module are to assess the prevalence and impact of special health care needs among children in all 50 States and the District of Columbia and evaluate change since 2001. This survey explored the extent to which children with special health care needs (CSHCN) have medical homes, adequate health insurance, and access to needed services.

The Autism Society has launched a new tool that makes it easier for those affected by autism to find local resources in their area. The new State Resources section of our Web site was designed by Autism Society information and referral experts, and features commonly requested resources sorted by state. These pages include localized information on Autism Society chapters, advocacy, public policy, autism waiver, education, community resources and events.

OCALI inspires change and promotes access to opportunities for people with disabilities. OCALI informs public policy and develops and deploys practices grounded in linking research to real life because they believe that people with disabilities have the opportunity to live their best lives.

An MCH Leader inspires and brings people together to achieve sustainable results to improve the lives of the MCH population.