link to: University of Minnesota

Leadership Education in Neurodevelopmental and Related Disabilities

Resources

Resource Highlights

LEND Briefs:

MN LEND Briefs

U of M LEND Fact Sheets:

Challenging Behavior Fact Sheets

Challenging Behaviors Series

Autism Spectrum Disorders

Sexuality and Disability

Click on a link to see resources in that category.

Disability

REPORT OF THE MINNESOTA SENATE AUTISM TASk FORCE
Senate report to the MN State
Autism Internet Modules: Linking research to real life
The Autism Internet Modules were developed with one aim in mind: to make comprehensive, up-to-date, and usable information on autism accessible and applicable to educators, other professionals, and families who support individuals with autism spectrum disorders (ASD). Written by experts from across the U.S., all online modules are free, and are designed to promote understanding of, respect for, and equality of persons with ASD.

UC Davis, Mind Institute: Distinguished Lecture Series
Series of lectures on neurdevelopmental topics form distinguished professionals in the field on a variety of topics from genetics to communication.
Autism Spectrum Disorders Among Preschool Children Participating in the Minneapolis Public SchoolsEarly Childhood Special Education Programs
In 2008, Somali parents and others in the Twin Cities area raised concerns about disproportionately high participation rates of young Somali children in an Early Childhood Special Education Citywide (ECSC) Autism Spectrum (ASD) Classroom Program operated by the Minneapolis Public Schools (MPS). Acting on the concerns of community members, experts from the Minnesota Department of Health spoke with several members of the community, including parents of children who were diagnosed with ASD, participated in a community forum to explore the issue and met with representatives of MPS to seek answers to the questions being raised.
Autism Speaks: Top Ten Autism Research Achievements of 2011
The young but burgeoning field of autism research continued its exponential rate of discovery in 2011—fueled in no small part by the joint commitment by government health agencies and private organizations to support this vital work. Our Top Ten Autism Research Achievements of the year include game-changing discoveries in how frequently autism recurs in families and the extent to which “environmental,” or non-genetic, influences increase the risk of autism in those who are genetically predisposed to this developmental disorder.
Social Policy Report: Autism Spectrum Disorders Diagnosis, Prevalence, and Services for Children and Families
This Social Policy Report summarizes selected recent studies on diagnosis, prevalence, and intervention, and discusses strategies for designing
social policies to help improve the outcomes and independence of children and adults with ASDs.
Top Ten Autism Research Advances of 2012
The Lancet retracts paper linking MMR vaccines and autism
This week, after receiving the conclusions of a multiyear ethics investigation of UK doctor Andrew Wakefield performed by the General Medical Counsel (GMC), the editors of British medical journal The Lancet formally retracted a study which purported to find a link between the childhood MMR vaccine, gastrointestinal disease, and autism. It was published in 1998 and has been a source of controversy ever since.
Top 10 Autism Research Events of 2009
This past year witnessed several important advances in autism research from the discovery of autism susceptibility genes to alarming new autism prevalence estimates to novel findings about effective treatments for autism spectrum disorders.
US Department of Health and Human Services: The Office of Planning, Research and Evaluation
The Office of Planning, Research and Evaluation (OPRE) studies Administration for Children and Families (ACF) programs and the populations they serve through rigorous research and evaluation projects. These include evaluations of existing programs, evaluations of innovative approaches to helping low-income children and families, research syntheses and descriptive and exploratory studies.
Prevalence of Autism Spectrum Disorders --- Autism and Developmental Disabilities Monitoring Network, United States, 2006
Earlier this year, a report conducted jointly by the CDC and the Health Resources and Services Administration found that autism occurred in 1 in 91 children. That report, however, was based on a telephone survey of parents. The new CDC study is considered more reliable because it’s based on 2006 health and educational records of 8-year-olds in 11 communities across the country.

The previous CDC estimate of 1 in 150 was based on an earlier version of the study on 8-year-olds.

The current research finds that communities saw an average increase of 57 percent in the number of children diagnosed with autism between 2002 and 2006.
Measures that Matter: The Status of Children and Youth with Special Health Care Needs
Measures that Matter is a joint effort of the Minnesota departments of Human Services and Health that aims to answer the questions:

• How are children and youth with special health care needs in Minnesota faring in comparison to their healthy peers in Minnesota?
• How are they doing compared to CYSHCN in other states?
• How are the various subgroups within Minnesota’s CYSHCN population doing in comparison to each other?
Randomized, Controlled Trial of an Intervention for Toddlers With Autism: The Early Start Denver Model
This is the first randomized, controlled trial to demonstrate the efficacy of a comprehensive developmental behavioral intervention for toddlers with ASD for improving cognitive and adaptive behavior and reducing severity of ASD diagnosis. Results of this study underscore the importance of early detection of and intervention in autism.
National Survey of Children with Special Health Care Needs
The primary goals of this module are to assess the prevalence and impact of special health care needs among children in all 50 States and the District of Columbia and evaluate change since 2001. This survey explored the extent to which children with special health care needs (CSHCN) have medical homes, adequate health insurance, and access to needed services.
Advancing Health Equity in Minnesota: A report to the Legislature
It is a great privilege to present this report on Advancing Health Equity in Minnesota. The growing economic inequities and the persistence of health disparities in our great state are a matter of life and death for many. Communities across the state are being devastated by high rates of infant mortality, diabetes, suicide, and more. Multiple efforts have been made to try to close the significant gaps in health outcomes across populations, but essentially we have been running in place.
This report reveals that:
• Even where health outcomes have improved overall, as in infant mortality rates, the disparities in these
outcomes remain unchanged: American Indian and African American babies are still dying at twice the rate of
white babies.
• Inequities in social and economic factors are the key contributors to health disparities and ultimately are what
need to change if health equity is to be advanced.
• Structural racism — the normalization of historical, cultural, institutional and interpersonal dynamics that
routinely advantage white people while producing cumulative and chronic adverse outcomes for people of color and American Indians — is rarely talked about. Revealing where structural racism is operating and where its effects are being felt is essential for figuring out where policies and programs can make the greatest improvements.
• Improving the health of those experiencing the greatest inequities will result in improved health for all.
Advancing Health Equity in Minnesota: A report to the Legislature
It is a great privilege to present this report on Advancing Health Equity in Minnesota. The growing economic inequities and the persistence of health disparities in our great state are a matter of life and death for many. Communities across the state are being devastated by high rates of infant mortality, diabetes, suicide, and more. Multiple efforts have been made to try to close the significant gaps in health outcomes across populations, but essentially we have been running in place.
This report reveals that:
• Even where health outcomes have improved overall, as in infant mortality rates, the disparities in these
outcomes remain unchanged: American Indian and African American babies are still dying at twice the rate of
white babies.
• Inequities in social and economic factors are the key contributors to health disparities and ultimately are what
need to change if health equity is to be advanced.
• Structural racism — the normalization of historical, cultural, institutional and interpersonal dynamics that
routinely advantage white people while producing cumulative and chronic adverse outcomes for people of color and American Indians — is rarely talked about. Revealing where structural racism is operating and where its effects are being felt is essential for figuring out where policies and programs can make the greatest improvements.
• Improving the health of those experiencing the greatest inequities will result in improved health for all.
AAP Newsletter Fall 2013: DSM-V guidelines on ASD and ADHD
This issue of the newsletter highlights the publication of the Diagnostic and Statistical Manual of Mental Disorders (DSM)-5 from the American Psychiatric Association, and particularly the diagnoses of attention deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) – highly relevant to both primary care and developmental- behavioral pediatrics. This affords a good opportunity to reflect of our use of the DSM as primary care and developmental-behavioral pediatricians.
Indiana Resource Center for Autism
The Indiana Resource Center for Autism (IRCA) staff conduct outreach training and consultations, engage in research, and develop and disseminate information focused on building the capacity of local communities, organizations, agencies, and families to support children and adults across the autism spectrum in typical work, school, home, and community settings. The Indiana Resource Center for Autism does not promote one method or a single intervention. Instead, IRCA staff strives to address the specific needs of the individual by providing information and training on a variety of strategies and methods.
GEMSS - Genetics Education Materials for School Success
The aim of GEMSS is to assure all children with genetic health conditions succeed in school-life. Children who have genetic conditions are members of neighborhood schools across the country. In fact, it is estimated that about 1 in 20 children have a genetic condition.
Autism Speaks: Transition Tool Kit
We hope that this kit will serve as a guide that can provide you with options to think about and explore as you and your adolescent with autism begin to plan for adulthood. The guiding principle that we used in developing this kit is that all individuals with autism, regardless of the level of support needed, should be able to live lives filled with purpose,dignity, choices, and happiness. With this in mind, the development of self-help and self-advocacy skills is highlighted throughout this kit.
Response to Intervention (RTI) Action Network
RTI holds the promise of ensuring that all children have access to high quality instruction, and that struggling learners – including those with learning disabilities – are identified, supported, and served early and effectively.
CDC-Learn the Signs Act Early
Center for Disease Control website on children's development with a focus on identifying Autism early. "Learn the sign, act early." Resources also available in multiple languages.
UC Davis, Mind Institute: Distinguished Lecture Series
Series of lectures on neurdevelopmental topics form distinguished professionals in the field on a variety of topics from genetics to communication.
Growing Ideas Tipsheets and Resources for Guiding Early Childhood Practices
This collection of resources was developed based on current evidence that quality inclusive care and education can only happen if there is a foundation of high-quality, regular education practices (Sandall & Schwartz, 2008).

These materials offer early childhood and school age care professionals information on a variety of topics in the form of tipsheets, resource pages, and an expanded virtual toolkit.

Each tipsheet is designed to be a starting point, providing basic topical information and pointing the reader to some of the best sources of extended information on the topic. The Growing Ideas virtual toolkit offers a professional development activity and featured resources for individual or group training or to share with parents and others.
Home-Based Early Intervention Benefits Autism Outcomes
Early intervention with autistic toddlers as young as 18 months resulted in improvements in cognition and adaptive behavior, a small but rigorous randomized trial found.

Social Policy Report: Autism Spectrum Disorders Diagnosis, Prevalence, and Services for Children and Families
This Social Policy Report summarizes selected recent studies on diagnosis, prevalence, and intervention, and discusses strategies for designing
social policies to help improve the outcomes and independence of children and adults with ASDs.
Discovering Behavioral Intervention: An online, interactive guide to applied behavior analysis to help children with autism spectrum disorder
Discovering Behavioral Intervention: A Parent's Interactive Guide to Applied Behavior Analysis (ABA) was designed with your new reality in mind. Developed by child development experts from the University of Massachusetts Medical School's Shriver Center, Discovering Behavioral Intervention is a self-paced, 10-module interactive learning guide to behavioral intervention using real-life situations.
Impact: Feature Issue on Sexuality and People with Intellectual, Developmental and Other Disabilities
What does it mean to affirm and support a positive, healthy sexuality for youth and adults with disabilities? That’s the focus of the publication Impact: Feature Issue on Sexuality and People with Intellectual, Developmental and Other Disabilities published by the Institute on Community Integration, University of Minnesota. Its articles cover topics ranging from sexuality education in the home and school, to personal stories of dating and marriage, to legal and ethical issues for staff and agencies providing services for people with disabilities. The Impact issue on sexuality is available online at http://ici.umn.edu/products/impact/232. In addition, a free print copy can be requested by calling 612-624-4512 or emailing icipub@umn.edu.
The National Professional Development Center on Autism Spectrum Disorders
The National Professional Development Center on Autism Spectrum Disorders has posted a number of resources for the public on their Web site, including: (1) Evidence-Based Practices for Children and Youth with Autism Spectrum Disorders; (2) Autism Internet Modules; and (3) Foundations of Autism Spectrum Disorders Online Course content.
Considering Culture in Autism Screening Kit
The MA Act Early team has developed the following materials for pediatric clinicians and community health center providers to use when conducting autism screening with children from families whose primary language is not English. These free materials may be downloaded and printed for use in practice.
Discovering Behavioral Intervention: An online, interactive guide to applied behavior analysis to help children with autism spectrum disorder
Discovering Behavioral Intervention: A Parent's Interactive Guide to Applied Behavior Analysis (ABA) was designed with your new reality in mind. Developed by child development experts from the University of Massachusetts Medical School's Shriver Center, Discovering Behavioral Intervention is a self-paced, 10-module interactive learning guide to behavioral intervention using real-life situations.
Autism Internet Modules: Linking research to real life
The Autism Internet Modules were developed with one aim in mind: to make comprehensive, up-to-date, and usable information on autism accessible and applicable to educators, other professionals, and families who support individuals with autism spectrum disorders (ASD). Written by experts from across the U.S., all online modules are free, and are designed to promote understanding of, respect for, and equality of persons with ASD.

Response to Intervention (RTI) Action Network
RTI holds the promise of ensuring that all children have access to high quality instruction, and that struggling learners – including those with learning disabilities – are identified, supported, and served early and effectively.
Genetics and Social Science, Expanding Transdisciplinary Research
A new genetics educational program(http://www.nchpeg.org/bssr/) will provide social and behavioral scientists with sufficient genetics background to allow them to engage effectively in interdisciplinary research with genetics researchers. The Office of Behavioral and Social Sciences Research (OBSSR) at the National Institutes of Health, partnered with the National Coalition for Health Professional Education in Genetics to create the free, Web-based project.

Increasingly, scientific outcomes are not fully explained by genetic, environmental, or social factors alone or as independent contributors. Instead, public health advances and scientific breakthroughs tend to rely on transdisciplinary teams of social scientists and genetic researchers. This creates a greater need among social and behavioral scientists for an understanding of the complexity of the genetic contribution to health, disease and behaviors.
An Epidemic of Fear: How Panicked Parents Skipping Shots Endangers Us All
So what has this award-winning 58-year-old scientist done to elicit such venom? He boldly states — in speeches, in journal articles, and in his 2008 book Autism’s False Prophets — that vaccines do not cause autism or autoimmune disease or any of the other chronic conditions that have been blamed on them. He supports this assertion with meticulous evidence. And he calls to account those who promote bogus treatments for autism — treatments that he says not only don’t work but often cause harm.
Indiana Resource Center for Autism
The Indiana Resource Center for Autism (IRCA) staff conduct outreach training and consultations, engage in research, and develop and disseminate information focused on building the capacity of local communities, organizations, agencies, and families to support children and adults across the autism spectrum in typical work, school, home, and community settings. The Indiana Resource Center for Autism does not promote one method or a single intervention. Instead, IRCA staff strives to address the specific needs of the individual by providing information and training on a variety of strategies and methods.
Medical Home- Cerebral Palsy
All primary care providers will care for children with cerebral palsy in
their practice. In addition to well-child and acute illness care, the role
of the medical home in the management of these children includes
diagnosis, planning for interventions, authorizing treatments, and
follow-up. Optimizing health and well-being for children with cerebral
palsy and their families entails family-centered care provided in the
medical home; comanagement is the most common model. This report
reviews the aspects of care specific to cerebral palsy that a medical
home should provide beyond the routine health care needed by all
children.
Making the Move to Managing Your Own Personal Assistance Services (PAS): A Toolkit for Youth with Disabilities Transitioning to Adulthood
Transitioning into adulthood can be awkward for nearly every young person. For transition-age youth with disabilities, issues surrounding managing Personal Assistance Services (PAS) can be intensified by normal developmental concerns such as striking out on your own and navigating the road into adulthood. Accessing and maintaining long-term supports, such as PAS, has often been a significant barrier to employment youth and adults with disabilities. This new guide assists youth in strengthening some of the most fundamental skills essential for successfully managing their own PAS: effective communication, time-management, working with others, and establishing professional relationships. Such skills are key to not only enhancing independence, but also thriving in the workplace and growing professionally.
The National Professional Development Center on Autism Spectrum Disorders
The National Professional Development Center on Autism Spectrum Disorders has posted a number of resources for the public on their Web site, including: (1) Evidence-Based Practices for Children and Youth with Autism Spectrum Disorders; (2) Autism Internet Modules; and (3) Foundations of Autism Spectrum Disorders Online Course content.
'I Am Autism': An Advocacy Video Sparks Protest
Few medical conditions rival autism as a magnet for controversy. Practically everything about the disorder — its cause, its treatment, the way it is diagnosed, how it is studied — is subject to bitter dispute, sometimes to the point of death threats.

CDC Autism Case Training- Developmental Behavioral Pediatrics Curriculum
The "Autism Case Training (ACT): A Developmental-Behavioral Pediatrics Curriculum" is designed to educate future healthcare providers on fundamental components of identifying, diagnosing, and managing autism spectrum disorders through real life scenarios.
CDC Autism Case Training
Welcome to the Autism Case Training (ACT) Web-based CE course. This introductory course contains three modules designed to help you better:

identify autism spectrum disorders, assist a family through the diagnostic process,and care for patients with autism spectrum disorders. Users will gain knowledge and skills to improve early identification of children with ASDs and ensure timely and appropriate care.
MHC Data Connect
Provides a comprehensive online database catalog of Maternal and Child Health (MCH) datasets, interactive tools, and other data resources for public health professionals, researchers, practitioners, policy makers and students.
Quality Mall: Person centered services supporting people with developmental disabilities.
Welcome to Quality Mall, a place where you can find lots of free information about person-centered supports for people with intellectual/developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with intellectual/developmental disabilities live, work and participate in our communities and improve the quality of their supports.

Autism Now: National Autism Resource and Information Center
Autism NOW: The National Autism Resource and Information Center will be a dynamic and interactive, highly visible and effective central point of quality resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other targeted key stakeholders.
University of Washington: Special Needs Fact Sheets
A collection of Fact sheets for 14 mild to moderate special needs conditions have been developed for Dental Professionals, Medical Professionals & Parents and Caregivers.

DSM-V Autism Resources from Association on University Centers on Disabilities
The Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was released in May 2013, bringing with it several revisions to the criteria for the diagnosis and classification of mental disorders. One important change was for Autism Spectrum Disorder (ASD) classifications. Under the new DSM-5 criteria, clinicians will diagnosis individuals with a single umbrella diagnosis of ASD, rather than the four separate disorders that could be diagnosed under the DSM-IV: autistic disorder, Asperger's disorder, childhood disintegrative disorder and pervasive developmental disorder not otherwise specified.
Ohio Center for Autism and Low Incidence
Based on a respect for individuals with autism and low incidence disabilities and our belief in their right, need, and desire to achieve their full potential, OCALI's mission is to build state- and system-wide capacity to improve their outcomes through leadership, training and professional development, technical assistance, collaboration, and technology.
NATIONAL CENTER FOR PRENATAL AND POSTNATAL DOWN SYNDROME RESOURCES
The National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky's Human Development Institute oversees three medically reviewed programs that complement each other in providing important resources and information for new and expectant parents learning about a diagnosis of Down syndrome: Brighter Tomorrows, Lettercase, and Down Syndrome Pregnancy. These programs also offer valuable resources for medical professionals delivering those diagnoses.

Autism Society of America
The Autism Society has launched a new tool that makes it easier for those affected by autism to find local resources in their area. The new State Resources section of our Web site was designed by Autism Society information and referral experts, and features commonly requested resources sorted by state. These pages include localized information on Autism Society chapters, advocacy, public policy, autism waiver, education, community resources and events.

Policy/Legislation

The poor pay more- poverty's high cost to health care
RWJF funded a recent report, The Poor Pay More: Poverty's High Cost to Health, which describes many social and economic factors influencing health and points to policies that have the potential for restoring the prospect of good health to the lives of the poor. The author presents compelling evidence that poverty leaves a broad footprint on the health of individuals—effects which have also been noted in published reports from the Robert Wood Johnson Foundation Commission to Build a Healthier America.
Racial/Ethnic Disparities in Access to Care Among Children: How Does Medicaid Do in Closing the Gaps?
This study sought to update earlier analyses and provide a more definitive assessment of how racial/ethnic disparities in access among Medicaid-enrolled children compare with disparities among privately insured and uninsured children.
State Demographer ReportDisability Data in the 2007 and 2008 American Community Surveys
Report on disability as reported in the 2008 American Community Survey and differences from 2007, especially in the structures of the questions on the survey and the difficulty of comparing past with present results. I thought you and some of your colleagues might be interested in this. While the questions in the 2008 survey might be more useful than in the past (I leave that to your judgment) the results are certainly different and could be misconstrued by someone who is not aware that 2008 should not be compared with 2007 or 2000 Census.
Advancing Health Equity in Minnesota: A report to the Legislature
It is a great privilege to present this report on Advancing Health Equity in Minnesota. The growing economic inequities and the persistence of health disparities in our great state are a matter of life and death for many. Communities across the state are being devastated by high rates of infant mortality, diabetes, suicide, and more. Multiple efforts have been made to try to close the significant gaps in health outcomes across populations, but essentially we have been running in place.
This report reveals that:
• Even where health outcomes have improved overall, as in infant mortality rates, the disparities in these
outcomes remain unchanged: American Indian and African American babies are still dying at twice the rate of
white babies.
• Inequities in social and economic factors are the key contributors to health disparities and ultimately are what
need to change if health equity is to be advanced.
• Structural racism — the normalization of historical, cultural, institutional and interpersonal dynamics that
routinely advantage white people while producing cumulative and chronic adverse outcomes for people of color and American Indians — is rarely talked about. Revealing where structural racism is operating and where its effects are being felt is essential for figuring out where policies and programs can make the greatest improvements.
• Improving the health of those experiencing the greatest inequities will result in improved health for all.
National Survey of Children with Special Health Care Needs
The primary goals of this module are to assess the prevalence and impact of special health care needs among children in all 50 States and the District of Columbia and evaluate change since 2001. This survey explored the extent to which children with special health care needs (CSHCN) have medical homes, adequate health insurance, and access to needed services.
Health Promotion for Persons with Intelllectual and Developmental Disabilities: The State of Scientific Evidence
This publication is based on a national conference held by the American Association of Mental Retardation (AAMR) in 2004. This key report summarizes current research on major topics affecting the health and well being of persons with intellectual disabilities. The book provides a solid basis for developing interventions and solutions to eliminate health disparities among persons with intellectual disabilities.
A Case for Inclusion 2009: An Analysis of Medicaid for Americans with Intellectual and Developmental Disabilities
The United Cerebral Palsy (UCP) annual Case for Inclusion is so important for benchmarking states’ actual performance in
improving lives for individuals with intellectual and developmental disabilities. More than how much or how little is being spent, the Case for Inclusion shows what is being achieved. As the University of Minnesota’s Research and Training Center on Community Living concisely states: “The promise of access to and support for integrated community lives and roles for persons with [intellectual and developmental disabilities] is clearly expressed in national legislative, judicial, administrative and other sources.
Advancing Health Equity in Minnesota: A report to the Legislature
It is a great privilege to present this report on Advancing Health Equity in Minnesota. The growing economic inequities and the persistence of health disparities in our great state are a matter of life and death for many. Communities across the state are being devastated by high rates of infant mortality, diabetes, suicide, and more. Multiple efforts have been made to try to close the significant gaps in health outcomes across populations, but essentially we have been running in place.
This report reveals that:
• Even where health outcomes have improved overall, as in infant mortality rates, the disparities in these
outcomes remain unchanged: American Indian and African American babies are still dying at twice the rate of
white babies.
• Inequities in social and economic factors are the key contributors to health disparities and ultimately are what
need to change if health equity is to be advanced.
• Structural racism — the normalization of historical, cultural, institutional and interpersonal dynamics that
routinely advantage white people while producing cumulative and chronic adverse outcomes for people of color and American Indians — is rarely talked about. Revealing where structural racism is operating and where its effects are being felt is essential for figuring out where policies and programs can make the greatest improvements.
• Improving the health of those experiencing the greatest inequities will result in improved health for all.
MN County Human Service Cost Report 2008
The purpose of the Minnesota County Human Service Cost Report is to provide a fair
representation of the costs and revenue sources involved in providing human service programs administered by the counties and supervised by the Minnesota Department of Human Services (DHS). The services are carried out by county human service agencies, county subcontractors,
and in some cases by DHS itself on behalf of the counties. Services are divided between Support, Health, and Social Service programs.
Social Policy Report: Autism Spectrum Disorders Diagnosis, Prevalence, and Services for Children and Families
This Social Policy Report summarizes selected recent studies on diagnosis, prevalence, and intervention, and discusses strategies for designing
social policies to help improve the outcomes and independence of children and adults with ASDs.
Recommendations for Minnesota’s Personal Care Assistance Program
Minnesota has a long history of implementing policies and programs to allow older adults and persons with disabilities to live in community settings rather than in institutions. The State’s Personal Care Assistance (PCA) program, operated by the Minnesota Department of Human Services (DHS) Disabilities Services Division, is an integral part of the State’s efforts to assist individuals to live in the community. Recognizing that the PCA program facilitates these goals, Minnesota has modified and enhanced its PCA program over the years.
Advancing futures for adults with Autism-National Town Hall
Today’s Advancing Futures for Adults with Autism (AFAA) National Town Hall drew more than 1,200 participants, facilitators and observers in 16 cities to shape a nationwide policy agenda that increases independence, engagement, and quality of life for adults living with autism.
Regulations.gov- Your voice in federal decision making
Regulations.gov is your source for U.S. government regulations and related documents. On this site you can find, read and comment on documents. Share your knowledge and make your voice count.
Children's Defense Fund
CDF is the foremost national proponent of policies and programs that provide children with the resources they need to succeed.

We champion policies that will lift children out of poverty; protect them from abuse and neglect; and ensure their access to health care, quality education, and a moral and spiritual foundation

Leadership

CDC Autism Case Training- Developmental Behavioral Pediatrics Curriculum
The "Autism Case Training (ACT): A Developmental-Behavioral Pediatrics Curriculum" is designed to educate future healthcare providers on fundamental components of identifying, diagnosing, and managing autism spectrum disorders through real life scenarios.
Maternal and Child Health Bureau (MCHB) Competencies- Revised Fall 2009
An MCH Leader inspires and brings people together to achieve sustainable results to improve the lives of the MCH population.
MCH Navigator: A training portal for MCH professionals
Welcome to the MCH Navigator, a learning portal for maternal and child health professionals, students, and others working to improve the health and well being of women, children, and families

Community

Health Coverage in Communities of Color: Talking about the New Census Numbers
This month, the U.S. Census Bureau released its latest data on income, poverty, and health coverage. The number of Americans living without health coverage is staggering: 46.3 million people were uninsured in 2008, and ommunities of color continued to bear the brunt of this crisis. In 2008, people of olor made up 35 percent of the U.S. population but 54 percent of the uninsured. In fact, as in years past, every racial and ethnic group had uninsured rates that were higher than the rate for non-Hispanic whites and higher than the national average.
Harvard University's Center on the Developing Child
Drawing on the full breadth of intellectual resources available across Harvard University’s schools and affiliated hospitals, the Center on the Developing Child generates, translates, and applies knowledge in the service of closing the gap between what we know and what we do to support positive life outcomes for children, particularly those who are vulnerable, in the United States and globally.
Genetics and Social Science, Expanding Transdisciplinary Research
A new genetics educational program(http://www.nchpeg.org/bssr/) will provide social and behavioral scientists with sufficient genetics background to allow them to engage effectively in interdisciplinary research with genetics researchers. The Office of Behavioral and Social Sciences Research (OBSSR) at the National Institutes of Health, partnered with the National Coalition for Health Professional Education in Genetics to create the free, Web-based project.

Increasingly, scientific outcomes are not fully explained by genetic, environmental, or social factors alone or as independent contributors. Instead, public health advances and scientific breakthroughs tend to rely on transdisciplinary teams of social scientists and genetic researchers. This creates a greater need among social and behavioral scientists for an understanding of the complexity of the genetic contribution to health, disease and behaviors.
OP-ED CONTRIBUTOR: The Short Life of a Diagnosis
We don’t yet know if Asperger syndrome is genetically identical or distinct from classic autism, but surely it makes scientific sense to wait until these two subgroups have been thoroughly tested before lumping them together in the diagnostic manual. I am the first to agree with the concept of an autistic spectrum, but there may be important differences between subgroups that the psychiatric association should not blur too hastily.
Council for Exeptional Children
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the educational success of individuals with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, advocates for individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.

This link will take you to the professional standards area of the website.
Harvard University's Center on the Developing Child
Drawing on the full breadth of intellectual resources available across Harvard University’s schools and affiliated hospitals, the Center on the Developing Child generates, translates, and applies knowledge in the service of closing the gap between what we know and what we do to support positive life outcomes for children, particularly those who are vulnerable, in the United States and globally.
Autism Speaks: Transition Tool Kit
We hope that this kit will serve as a guide that can provide you with options to think about and explore as you and your adolescent with autism begin to plan for adulthood. The guiding principle that we used in developing this kit is that all individuals with autism, regardless of the level of support needed, should be able to live lives filled with purpose,dignity, choices, and happiness. With this in mind, the development of self-help and self-advocacy skills is highlighted throughout this kit.
Making the Move to Managing Your Own Personal Assistance Services (PAS): A Toolkit for Youth with Disabilities Transitioning to Adulthood
Transitioning into adulthood can be awkward for nearly every young person. For transition-age youth with disabilities, issues surrounding managing Personal Assistance Services (PAS) can be intensified by normal developmental concerns such as striking out on your own and navigating the road into adulthood. Accessing and maintaining long-term supports, such as PAS, has often been a significant barrier to employment youth and adults with disabilities. This new guide assists youth in strengthening some of the most fundamental skills essential for successfully managing their own PAS: effective communication, time-management, working with others, and establishing professional relationships. Such skills are key to not only enhancing independence, but also thriving in the workplace and growing professionally.
Children's Hospital Los Angeles- Translated ASD Fact Sheets
Children's Hospital Los Angeles in partnership with the UCEED at USC have translated the CDC's "know the signs, act early" fact sheets into 13 different languages.
Considering Culture in Autism Screening Kit
The MA Act Early team has developed the following materials for pediatric clinicians and community health center providers to use when conducting autism screening with children from families whose primary language is not English. These free materials may be downloaded and printed for use in practice.
Harvard University's Center on the Developing Child
Drawing on the full breadth of intellectual resources available across Harvard University’s schools and affiliated hospitals, the Center on the Developing Child generates, translates, and applies knowledge in the service of closing the gap between what we know and what we do to support positive life outcomes for children, particularly those who are vulnerable, in the United States and globally.
AAP Newsletter Fall 2013: DSM-V guidelines on ASD and ADHD
This issue of the newsletter highlights the publication of the Diagnostic and Statistical Manual of Mental Disorders (DSM)-5 from the American Psychiatric Association, and particularly the diagnoses of attention deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) – highly relevant to both primary care and developmental- behavioral pediatrics. This affords a good opportunity to reflect of our use of the DSM as primary care and developmental-behavioral pediatricians.
Autism Distance Education Parent Training (ADEPT)
Online education to increase and improve parenting skills for parents of children with Autism.
Harvard University's Center on the Developing Child
Drawing on the full breadth of intellectual resources available across Harvard University’s schools and affiliated hospitals, the Center on the Developing Child generates, translates, and applies knowledge in the service of closing the gap between what we know and what we do to support positive life outcomes for children, particularly those who are vulnerable, in the United States and globally.
Quality Mall: Person centered services supporting people with developmental disabilities.
Welcome to Quality Mall, a place where you can find lots of free information about person-centered supports for people with intellectual/developmental disabilities. Each of the Mall stores has departments you can look through to learn about positive practices that help people with intellectual/developmental disabilities live, work and participate in our communities and improve the quality of their supports.

The Association of University Centers on Disabilities (AUCD),
The Association of University Centers on Disabilities (AUCD), located in Silver Spring, MD, promotes and supports a national network of interdisciplinary centers on disabilities. The members of AUCD represent every U.S. state and territory and include 67 University Centers for Excellence in Developmental Disabilities (UCEDD), 38 Interdisciplinary Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and 21 Intellectual and Developmental Disabilities Research Centers (IDDRC). Together, these organizations advance policy and practice through research, education, leadership, and services for and with individuals with developmental and other disabilities, their families and communities, in support of independence, productivity, and satisfying quality of life.
CDC-Learn the Signs Act Early
Center for Disease Control website on children's development with a focus on identifying Autism early. "Learn the sign, act early." Resources also available in multiple languages.
University of Washington: Special Needs Fact Sheets
A collection of Fact sheets for 14 mild to moderate special needs conditions have been developed for Dental Professionals, Medical Professionals & Parents and Caregivers.

Growing Ideas Tipsheets and Resources for Guiding Early Childhood Practices
This collection of resources was developed based on current evidence that quality inclusive care and education can only happen if there is a foundation of high-quality, regular education practices (Sandall & Schwartz, 2008).

These materials offer early childhood and school age care professionals information on a variety of topics in the form of tipsheets, resource pages, and an expanded virtual toolkit.

Each tipsheet is designed to be a starting point, providing basic topical information and pointing the reader to some of the best sources of extended information on the topic. The Growing Ideas virtual toolkit offers a professional development activity and featured resources for individual or group training or to share with parents and others.